Rare diseases - In dialogue for better care.
In Germany, about four million people live with a rare disease! So they're not that rare. However, only for 3% of the 7,000 - 8,000 rare diseases are currently approved medicines. A great challenge, not only for doctors, but also for politics. And for the patients resembles the time until the correct diagnosis of an odyssey, the often serious illnesses often lead to immense restrictions in everyday life - also of the relatives.
On this evening, one of those affected reported her long journey to diagnosis. Doctors and experts report on the current care situation and point out perspectives that can make life with a rare disease easier. Affected and interested parties are cordially invited to the free event and can ask their questions.
PresentationUlli cell (rbb)
Discussion groupCatrin Ender (LAM patient)Prof. Dr. med. Hubert Wirtz (Head of the Department of Pneumology, University Hospital Leipzig)PD Dr. Peter Andreas Löschmann (Medical Director, Pfizer Germany)
"Myths and Facts"Dr. Siegfried Throm (Managing Director Research/Development/Innovation, Verband Forschender Arzneimittelhersteller e.V.)
Question and answer session and discussion with the audience.
location & access
airport Tegel (TXL)
airport Schönefeld (SXF)